“Seven years is not forever — whatever challenge you find yourself in, remember that resilience and hope can carry you, because overcoming is just around the corner”

 

Ufuoma Muwhen

2025 Top 30 Under 30

About

 

AGE: 26

PRONOUNS: She/Her

HOMETOWN: Edmonton, AB

CURRENT RESIDENCE: Edmonton, AB

ORGANIZATIONS:

    • NotJustYou
    • 1834 Foundation, 1834 Fellowship
    • Edmonton Community Foundation, Hilltop Committee

Sustainable Development Goals (SDGs)

I am most passionate about:

What specific issue(s) are you working to address, and what motivates you to do so?

I am committed to addressing the systemic inequities and health disparities faced by individuals living with sickle cell disease (SCD). Through my nonprofit, NotJustYou, I work to improve awareness, education, mental health support, and community engagement for those affected by SCD, particularly within Black communities. My motivation stems from personal experiences and the realization of the profound gaps in resources and understanding for those navigating this chronic condition.

My work continues to grow in scope and impact through initiatives like:

  •   World Sickle Cell Day Brunch: A signature event celebrating the resilience of SCD warriors, fostering community connection, and raising awareness.
  •   The Kickback: A lively event blending culture, advocacy, and action, such as group blood donations and stem cell registry sign-ups.
  •   Cellular: A traveling event series aimed at building a diverse stem cell donor network while providing opportunities for professional and personal connections.
  •   Bright Program: Offering holistic support through Bright Boxes, mental health resources, financial assistance, and a developing transplant support program.
  •   Cells Program: The first national peer support network for individuals with SCD and their caregivers, providing a safe space for sharing experiences and building solidarity.
  •   The Chronic Illness Management App: Developing a tool to track symptoms and empower individuals with SCD to take charge of their health.

At the heart of my work is a desire to dismantle systemic barriers, amplify the voices of marginalized communities, and provide tangible support to those often overlooked by the healthcare system.

What is your foundation?

My foundation lies in the intersection of my identities: as a Black woman of Nigerian descent, and as someone living with a chronic illness. Growing up, I encountered the dual challenges of navigating systemic racism and the stigma surrounding my health condition. These experiences forced me to confront obstacles head-on, building a resilience that now fuels my work. Living in the intersection of these identities taught me how to go against the grain and fight for representation and equity in spaces that weren’t designed for me. The journey hasn’t been easy, but it has shaped me into someone unafraid to challenge the status quo.

My family’s emphasis on education, my faith, and a supportive community helped me overcome hurdles while instilling a sense of responsibility to advocate for others. Founding NotJustYou was a natural step in turning my personal challenges into a mission to uplift others navigating similar struggles.

What is your vision for the future?

I envision a world where systemic barriers no longer limit access to equitable healthcare, education, and opportunities for marginalized communities. My work contributes to this vision by fostering inclusivity, raising awareness, and empowering individuals to advocate for themselves and their communities.

In the future, I see myself as a leader in the social sector and public policy, influencing systemic change at local and national levels. Success would mean seeing programs like NotJustYou flourish, becoming sustainable pillars of support for communities across Canada and beyond. On a broader scale, my vision is of a world where equity, dignity, and opportunity are foundational principles. I’ll know my work was worth it when the stories and successes of those I’ve empowered outnumber the challenges we’ve had to overcome. I hope to leave behind a legacy of empowerment and systemic change while gaining meaningful connections and the knowledge that my work has contributed to a more equitable world.

Ufuoma had the incredible opportunity to meet Prime Minister Justin Trudeau and 19 other exceptional Black youth to discuss critical issues affecting Black Canadian communities. She proudly shared the story of her nonprofit, NotJustYou, and was deeply honored by the Prime Minister’s acknowledgment of the systemic challenges linked to sickle cell disease.

Ufuoma kicked off Sickle Cell Awareness Month with The Kickback, a vibrant rooftop event that brought the community together to celebrate and raise awareness. From her inspiring speech to the soulful music, blood donor registrations,and shared connections, the event set the tone for a month of impactful initiatives led by NotJustYou.
During a visit to SickKids Hospital in Toronto, Ufuoma presented a $1,000 donation from NotJustYou, along with warrior bags for sickle cell patients. Returning to the hospital where her advocacy journey began was a powerful moment, symbolizing the growth and impact of her work in supporting individuals and families affected by sickle cell disease.
Ufuoma represented Canada as part of the delegation at the United Nations’ Permanent Forum on People of African Descent in Geneva. As the CEO of NotJustYou, she joined global leaders to advocate for the rights and improved livelihoods of people of African descent, highlighting her commitment to creating systemic change.

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